You have a diagnosis of brain cancer. Your world may feel like it’s falling apart. You may feel alone and confused. We are here to say to you that we understand what you are feeling and there is HOPE. The EndBrainCancer Initiative is made up of people who have walked this journey with brain cancer: as patients, as caregivers, as doctors, as nurses, as researchers, as business people in the drug industry, as oncologists, as surgeons, as neuro-surgeons. What we share in common is a dedication to YOU! We are a community striving together to help brain cancer patients NOW.
What is the first step? Well there are several aspects to the first step. Follow what we say below. Give us your information and then take a breath. We are on board with you to help you move ahead…
- MAKE SURE YOUR SURGEON PRESERVES A LIVE BRAIN TUMOR TISSUE SAMPLE: This is important so your specific cancer can be genetically profiled. That information could be a key to any future personalized treatments you will get or your opportunity to enter a clinical trial.
- MAKE SURE YOU ASK ABOUT ADVANCED TREATMENTS AVAILABLE TO YOU…
- CONSIDER CLINICAL TRIALS – TELL US YOU ARE INTERESTED! Clinical trials are studies that test certain drugs and protocols. Getting qualified can be a complex process. We can help guide you. Filling out the form will indicate your interest.
- WAIT TO START CHEMOTHERAPY UNTIL YOU KNOW YOUR OPTIONS FOR ADVANCED TREATMENT AND FOR CLINICAL TRIALS– Sometimes if you start chemo, it can disqualify you for certain treatments and trials. Explore your options. Fill in the form and we will help you navigate the path.
