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March 27, 2023

What Are Decentralized Clinical Trials, eConsent, How to Access and Can They Help YOU?

Decentralized Clinical Trials (DCT’s) are trials where some or all trial-related procedures and compiling of patient and trial data takes place at locations/sites that are remote from the Principal Investigator (PI) or other investigators.  It is thought that Decentralized clinical trials will remove some of the barriers, such as travel-related burdens that patients and their caregivers/families often experience when participating in a trial, therefore, increasing access and participation in trials.

With DCT’s, comes the accommodation known as an “e-Consent, which eliminates the need to travel to the study location/site solely to provide consent in person to participate in a clinical trial, which makes it much easier for patients to participate.  There is a broader effort currently underway by LUNGevity Foundation and the National Brain Tumor Society (NBTS) to analyze existing e-Consent forms/policies from 16 major academic medical centers to review, analyze and study increased use of remote and electronic consent practice.

Review the findings from Assessing update of Remote Consent for Clinical Trials at:

To reach LUNGevity’s Lung Cancer HELPLine, call 844-360-5864.  Also, find clinical trials for lung cancer at: and at

If you are a patient that has lung cancer that has spread to your brain, please contact, fill out our short “Advocacy & Patient Inquiry Form, or call Tehmina Zaidi, EBCI’s Program & Trial/Study Manager at 425-436-8688,  We are here to help.


Dellann Elliott Mydland
President & Board Chair

The EndBrainCancer Initiative | Chris Elliott Fund


Enhancing patient outcomes by expanding FDA-approved treatment modalities and fueling research in the pharma/bio/life sciences, device & diagnostic industries and by closing the existing GAP from initial diagnosis to IMMEDIATE AND EXPANDED ACCESS to specialists, researchers, advanced & innovative treatments, clinical trials and critical care with the ultimate goal of improving patient outcomes through updating and improving WHO & NCCN Guidelines and clinical practices related to Standard of Care for brain cancer patients.

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