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October 20, 2023

Make YOUR Voice Heard! Raising Patient Voices with EBCI

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Your Voice is Important

The End Brain Cancer Initiative wants to make your voice heard. By participating in one of the studies below, you will advance our understanding of the treatment and management of these diseases. 

Metastatic Non-Small Cell Lung Cancer (NSCLC) Survey

People diagnosed within the last three years with Non-Small Cell Lung Cancer (NSCLC) that has metastasized to the brain are invited to participate in this paid opportunity.

  • Receive $200 for your time
  • 10-15 minute surveys for up to 2 weeks
  • 60 minutes total of tasks

Low Grade Glioma (LGG) Patient Survey

Low-grade Glioma survey

Low Grade Glioma (LGG) patients are invited to take a short anonymous online survey. Responses will be used to build programs to better serve Low Grade Glioma patients and their families.

  • 15-minute online survey
  • For LGG patients & caregivers
  • Patients must be 18+ years old

Recurrent Glioblastoma (rGBM) Study

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Your perspectives and insights will help to shape future treatments for GBM!
Call 425.436.8688 or click below.

Understanding newly diagnosed, first recurrent, and recurrent in GBM

Newly Diagnosed GBM

Signifies the initial diagnosis of glioblastoma multiforme. It occurs when a patient experiences symptoms like headaches, seizures, vision problems, and seeks medical attention. During a routine check-up or through MRI and CT scans, a sizable brain mass or tumor is detected. Subsequent medical tests confirm the diagnosis of GBM.

Recurrent GBM

As its name suggests, indicates the return of the cancerous tumor. This recurrence becomes apparent through a follow-up set of MRI or CT scans. Recurrent GBM implies that, despite previous interventions such as surgery, chemotherapy, and radiation, the tumor has proven resilient and reappeared in the same area of the brain.

First Recurrent GBM

Specifies that after the initial diagnosis and the treatments administered to eliminate cancer cells, this marks the first instance of recurrence or reappearance.

This PRO rGBM survey is only for patients with first recurrent GBM.

Shreya Prakash photo

Now offering evening availability!
To better accommodate working participants and those in different time zones, our Clinical Research Coordinator/Patient Navigator is now available two evenings a week to conduct rGBM Study interviews: Tuesdays and Wednesdays from 6PM to 9PM PST.

Questions? Contact Shreya Prakash: 

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Enhancing patient outcomes by expanding FDA-approved treatment modalities and fueling research in the pharma/bio/life sciences, device & diagnostic industries and by closing the existing GAP from initial diagnosis to IMMEDIATE AND EXPANDED ACCESS to specialists, researchers, advanced & innovative treatments, clinical trials and critical care with the ultimate goal of improving patient outcomes through updating and improving WHO & NCCN Guidelines and clinical practices related to Standard of Care for brain cancer patients.

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