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April 29, 2024

EBCI Welcomes New Board Member Pat Jones

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New Advisory & Scientific Board Member

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Board Member Pat Jones

We are pleased to welcome Pat Jones to the End Brain Cancer Initiative as the newest member of our Advisory & Scientific Board. Pat was an active-duty member of the Navy for 26 years and spent an additional 16 years working for the Navy as a civilian. He gained valuable skills, such as strategic planning, in his 42 years working for the Department of the Navy, which he is now applying to his new role with EBCI.

“EBCI needs to be here forever, or until we discover a cure for this disease. EBCI helps find clinical trials for people, informs people that they don’t always have to make a decision on the day the doctor tells them, and makes people aware that they can get a second opinion,” said Pat. “Sometimes there are opportunities to make a less-than-crisis decision about what your options are." You can support EBCI's mission, services, and programs by making a donation today.

“Our Board of Directors and I are very much looking forward to working strategically with Pat to help drive in resources & support to EBCI so that we can increase our capacity for patient 'Direct Services' while also keeping those services free to patients, care partners and their families," said Dellann Elliott Mydland, EBCI President & CEO. "Pat will be a vital part in increasing our patient services, survivorship, treatment options, research, FDA approval of new treatment options and coverage and reimbursement of these treatments. Welcome Pat!”

Pat met his wife, Kathleen (Kate) Straub-Jones, while both of them were serving in the Navy. After retiring to Washington State, the couple decided to go on a road trip, which was when Kate started having issues with her vision. She saw an ophthalmologist who discovered that her vision was gone in the upper right quadrant in both eyes. After seeing her general practitioner and receiving an MRI, they were quickly scheduled with a neurosurgeon. The neurosurgeon told them that based on the MRI he was 90% positive that she had a brain tumor. 

It was confirmed with a biopsy that Kate had a Glioblastoma brain tumor and they were informed that the tumor was in a location where it couldn’t be operated on. They were referred to the Albert Brain Tumor Center at UW Medical Center where Kate started chemo, radiation, and the full Standard of Care (SOC). One of Pat’s sons and daughters-in-law started researching treatment options and pointed them to Tumor Treating Fields. Along the way, they also connected with EBCI when they met a team member at the Pierce County Cancer Survivorship Conference.

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Kathleen (Kate) Straub-Jones

After 4 years and her second recurrence, Kate started having seizures while on vacation in Kauai. She passed away on March 5, 2023.

"I have a need within me to help after I lost my wife of forty years to this nasty disease,” Pat said. He and Kate were both involved in Head to the Hill, and on May 6-7 he will be returning to Capitol Hill to share his story and advocate on behalf of the brain tumor community.

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Enhancing patient outcomes by expanding FDA-approved treatment modalities and fueling research in the pharma/bio/life sciences, device & diagnostic industries and by closing the existing GAP from initial diagnosis to IMMEDIATE AND EXPANDED ACCESS to specialists, researchers, advanced & innovative treatments, clinical trials and critical care with the ultimate goal of improving patient outcomes through updating and improving WHO & NCCN Guidelines and clinical practices related to Standard of Care for brain cancer patients.

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