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Having immersed myself in medical terminology and the language of brain tumor treatments I sometime forget that, for most people, the daily glossary and language of patient support and education is truly foreign.

My hope is that these terms and labels grow in familiarity because of advancement in treatments and saved lives. For today, here is what we mean when we talk about a brain tumor:   • Glioblastoma multiforme (GBM) – This tumor forms in the white matter of the brain. GBM represents 52% of all cerebral […]

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New GBM Brain Tumor Vaccine

http://www.firstcoastnews.com/news/article/244707/483/New-Vaccine-Helping-Brain-Cancer-Patients This is a phase II clinical trial using heat shock protein vaccine (HSPPC-96) for patients with newly diagnosed glioblastoma multiforme (GBM). The trial employs cancer immunotherapy, an important new treatment modality, with HSPPC-96 being a novel approach to active specific immunotherapy. By targeting the immune system and activating a patient specific T-cell response, the vaccine […]

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We’re in transition due to our success…

This statement, by Jeff Kolodin, Chair of the National Brain Tumor Society Board of Directors, captures exactly where The Elliott Foundation is today. Jeff speaks from firsthand experience; first, as a 20-year brain tumor survivor, and second, as someone who has helped shepherd the NBTS through a two-year transition that changed the focus of the […]

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Another great loss: Hall of Fame catcher Gary Carter dies

Brain cancer has taken another great man. Baseball great, Gary Carter died on Friday, Feb., 17th after a 10-month battle with glioblastoma brain cancer. The 11 time golden glove winner and MVP was remembered by former Mets manager Davey Johnson, and current manager of the Washington Nationals; “Nobody loved life in a bigger way than Gary. Gary’s […]

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Making the Best of Patient Support Free to Everyone

The diagnosis of brain cancer is frightening. I know personally the gut wrenching fear that hits you when you hear that diagnosis. But it’s the question of “what next?” that is also so difficult. Dealing with a myriad of decisions places patients and their loved ones in a very vulnerable and stressful place.   Brain […]

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New Co-Pay Program Through The Musella Foundation

One important aspect of patient support is helping people navigate insurance issues. In fact, outside of treatment options, insurance issues are the second biggest patient education topic for The Elliott Foundation and an important part of our Integrated Patient Support Program. That is why we are glad to pass along that The Musella Foundation is now […]

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THANK YOU VICKI PENE for BEING PART OF THE CURE!

“After graduating with a Marketing degree from San Diego State in 1987, I somehow ended up in the hotel industry as a catering manager, planning meetings and weddings. Feeling unsettled in my job by the time 1997 came around  I was looking for a new direction. After much aptitude testing, a career counselor suggested I […]