Today, it is May 17, 2020 and I am spending my day reflecting on the national brain tumor community. Specifically, I am also spending a lot of time over the last several weeks, amongst COVID-19, reflecting on the my late husband’s brain cancer journey and the last 18 years of co-founding and running the Chris […]
WEBINAR! COVID-19 & BRAIN CANCER! Important information on how COVID-19 affects Brain Cancer (and other cancer) patients. Join Al Musella of the Musella Foundation and Dr. Eric T. Wong, Brain Tumor Center & Neuro-Oncology Unit, Beth Israel Deaconess Medical Center, Dana Farber/Harvard Cancer Center and Harvard Medical School.
Book Launches with Call for Stories: Author and Advocate Dellann Elliott Mydland Calls for Stories Where Tragedy was Transformed for Good to Help Others SEATTLE, Aug. 27, 2019 /PRNewswire/ — Dellann Elliott Mydland, co-founder of the EndBrainCancer Initiative (EBCI), announces a new book she is writing to tell her story, and invites members of the […]
Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies On August 7, the Centers for Medicare & Medicaid Services (CMS) finalized the decision to cover FDA-approved Chimeric Antigen Receptor T-cell, or “CAR T-cell” therapy, which is a form of cancer treatment that uses a patient’s own genetically-modified immune cells to fight […]
The EndBrainCancer Initiative Urges Support for New FDA Clinical Trial Diversity Guidelines and Proposes Key Amendments Proposed Changes Offer Patients with Brain Cancer and Other Rare Diseases Access to Advocacy Oriented “Patient Partner Navigation Services” Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network SEATTLE, Aug. 1, 2019 /PRNewswire/ — The […]
The EndBrainCancer Initiative Calls on All Americans to Recognize and Support the Inaugural National Glioblastoma Awareness Day on July 17th Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network SEATTLE, July 15, 2019 /PRNewswire/ — In June, the U.S. Senate took swift action and passed Senate Resolution 245 by unanimous consent. […]
Thank you so much for your interest in submitting your story for my collaborative book. First, let me tell you more about myself and my mission and purpose for this book. In my daily life, I am the co-founder, President and Chair of the EndBrainCancer Initiative (formerly the Chris Elliott Fund) www.EndBrainCancer.org. My late husband, Chris […]
EndBrainCancer Initiative Announced Campaign for New Brain Cancer Clinical Trials in the Greater Puget Sound Area at its Education, Awareness & Action Dinner Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network SEATTLE, June 13, 2019 /PRNewswire/ — The EndBrainCancer Initiative (EBCI) held its 8th Annual “Brains Matter” Dinner on May 15th raising […]
The EndBrainCancer Initiative Urges Immediate ACTION so Brain Cancer Patients are Not Excluded from Medicare Coverage for Genetic Profiling (Next Generation Sequencing-NGS) Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network SEATTLE, May 9, 2019 /PRNewswire/ — In 2018, the Centers for Medicaid and Medicare Services (CMS) approved funding for specific diagnostic […]
The EndBrainCancer Initiative to Feature Renowned Brain Cancer and Modified Poliovirus Duke Researcher, Dr. Annick Desjardins, as its Keynote Speaker for the 2019 Annual May “Brains Matter” ACTION Dinner as Advocacy is Underway Now to Bring this Treatment Option to the Seattle Area Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network […]
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