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Post Category: Advocacy in Action

April 23, 2024
tovorafenib FDA Approval for LGG

(Courtesy of ASCO FDA Alerts) tovorafenib FDA Approval for LGG On April 23, 2024, the Food and Drug Administration granted accelerated approval to tovorafenib (Ojemda, Day One Biopharmaceuticals, Inc.) for patients 6 months of age and older with relapsed or refractory pediatric low-grade glioma (LGG) harboring a BRAF fusion or rearrangement, or BRAF V600 mutation. […]

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March 29, 2024
ACT NOW: Comment Publicly to Support Coverage of Brain Cancer Treatment in WA State

Take Action. Contact the Washington State Health Care Authority to make an FDA-approved GBM treatment accessible for all patients.

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March 21, 2024
ACT NOW: Urgent Advocacy Needed for WA State Residents to Expand Access for Cancer Patients

Join us in advocating for coverage for the Tumor Treating Fields device by the Washington State Health Care Authority.

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February 29, 2024
A Message from Our CEO: Help DCVax®-L Gain FDA Approval

DCVax®-L represents a novel form of immunotherapy, developed by Northwest Biotherapeutics, which could be a new treatment option for glioblastoma. Join the movement to seek FDA approval.

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December 19, 2023
Help Patients Access Treatments By Showing Your Support For The Promising Pathway Act

The Promising Pathway Act shortens the approval process for revolutionary treatments, helping the people access these promising new treatments.

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December 3, 2023
We URGENTLY Need Your Support In Reaching Out To Your Senators & Representatives!

The Promising Pathway Act will double the speed of development of revolutionary treatments and could lead to the cure we've been seeking..

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November 21, 2023
A Grateful November: Celebrating Family Caregivers

In the spirit of Thanksgiving, November becomes a canvas for expressions of gratitude. It's a time to spotlight the often-overlooked heroes among us—family caregivers. These remarkable individuals selflessly carry emotional, physical, and financial responsibilities to safeguard their loved ones on challenging health journeys. Let's take a moment to honor and celebrate these caregivers who give […]

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October 5, 2022

PDUFA, the Prescription Drug User Fee Acts, ensures the FDA retains its capacity to promote the health and well-being of all Americans for another five years.

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September 21, 2022
Prescription Drug User Fee Act

Show your support for the re-authorization of the PDUFA act. Send a petition for Senator Murray who leads the appropriations committee.

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March 29, 2022
If The #’s Don’t Make Sense, The DREAM Has To…

This year is all about the reality of running a 501(c)3 non-profit Advocacy organization from my perspective that directly and head-on meets the large unmet needs of patients, caregivers and their family members after a GBM diagnosis.

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March 28, 2022
LIVING Your Legend: by Dellann Elliott Mydland, Co-Founder, CEO, President & Board Chair

I am proud to announce our new BLOG Post Series, titled “LIVING Your Legend” in honor of celebrating 20 years of living the mission.

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February 28, 2022
“Incisionless Surgery” Treatment Approach: Metabolic Targeting of GBM

This month’s CURE MAG Cover Tip brought to you by the End Brain Cancer Initiative,  and through our patient advocacy and disease education partnership with CURE, focuses on Glioblastoma Multiforme (GBM).

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Enhancing patient outcomes by expanding FDA-approved treatment modalities and fueling research in the pharma/bio/life sciences, device & diagnostic industries and by closing the existing GAP from initial diagnosis to IMMEDIATE AND EXPANDED ACCESS to specialists, researchers, advanced & innovative treatments, clinical trials and critical care with the ultimate goal of improving patient outcomes through updating and improving WHO & NCCN Guidelines and clinical practices related to Standard of Care for brain cancer patients.

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