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Today Would Have Been our 2020 Bellingham Brain Cancer Walk….

Today, May 31, 2020, the very last day of #BTAM month, I find myself reflecting on many things and just looked through the photos from last year’s Bellingham Brain Cancer WALK (BBCW) , Presenting Sponsor:  Novocure (www.novocure.com)  and am smiling and crying at the same time.  Just look at these photos!  What a super cool […]

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2020 National HOPE Award – A Message From Our President

Today, it is May 17, 2020 and I am spending my day reflecting on the national brain tumor community.  Specifically, I am also spending a lot of time over the last several weeks, amongst COVID-19, reflecting on the my late husband’s brain cancer journey and the last 18 years of co-founding and running the Chris […]

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Brain Tumor Patients and the COVID-19 Crisis – The Musella Foundation w/ Eric T. Wong, M.D.

Brain Tumor Patients and the COVID-19 Crisis – The Musella Foundation w/ Eric T. Wong, M.D.

WEBINAR! COVID-19 & BRAIN CANCER! Important information on how COVID-19 affects Brain Cancer (and other cancer) patients. Join Al Musella of the Musella Foundation and Dr. Eric T. Wong, Brain Tumor Center & Neuro-Oncology Unit, Beth Israel Deaconess Medical Center, Dana Farber/Harvard Cancer Center and Harvard Medical School.  

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Book Launches with Call for Stories: Author and Advocate Dellann Elliott Mydland Calls for Stories Where Tragedy was Transformed for Good to Help Others

Book Launches with Call for Stories: Author and Advocate Dellann Elliott Mydland Calls for Stories Where Tragedy was Transformed for Good to Help Others

Book Launches with Call for Stories: Author and Advocate Dellann Elliott Mydland Calls for Stories Where Tragedy was Transformed for Good to Help Others SEATTLE, Aug. 27, 2019 /PRNewswire/ — Dellann Elliott Mydland, co-founder of the EndBrainCancer Initiative (EBCI), announces a new book she is writing to tell her story, and invites members of the […]

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Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies

Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies

Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies On August 7, the Centers for Medicare & Medicaid Services (CMS) finalized the decision to cover FDA-approved Chimeric Antigen Receptor T-cell, or “CAR T-cell” therapy, which is a form of cancer treatment that uses a patient’s own genetically-modified immune cells to fight […]