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Post Category: Advocacy in Action

December 19, 2023
Help Patients Access Treatments By Showing Your Support For The Promising Pathway Act

The Promising Pathway Act shortens the approval process for revolutionary treatments, helping the people access these promising new treatments.

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December 3, 2023
We URGENTLY Need Your Support In Reaching Out To Your Senators & Representatives!

The Promising Pathway Act will double the speed of development of revolutionary treatments and could lead to the cure we've been seeking..

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October 5, 2022
ADVOCACY & DISEASE EDUCATION: PDUFA

PDUFA, the Prescription Drug User Fee Acts, ensures the FDA retains its capacity to promote the health and well-being of all Americans for another five years.

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September 21, 2022
Prescription Drug User Fee Act

Show your support for the re-authorization of the PDUFA act. Send a petition for Senator Murray who leads the appropriations committee.

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March 29, 2022
If The #’s Don’t Make Sense, The DREAM Has To…

This year is all about the reality of running a 501(c)3 non-profit Advocacy organization from my perspective that directly and head-on meets the large unmet needs of patients, caregivers and their family members after a GBM diagnosis.

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March 28, 2022
LIVING Your Legend: by Dellann Elliott Mydland, Co-Founder, CEO, President & Board Chair

I am proud to announce our new BLOG Post Series, titled “LIVING Your Legend” in honor of celebrating 20 years of living the mission.

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February 28, 2022
“Incisionless Surgery” Treatment Approach: Metabolic Targeting of GBM

This month’s CURE MAG Cover Tip brought to you by the End Brain Cancer Initiative,  and through our patient advocacy and disease education partnership with CURE, focuses on Glioblastoma Multiforme (GBM).

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September 10, 2021
The Importance of Shared Decision-Making for Patients With Glioblastoma

Navigating care for patients with cancer can be overwhelming considering the multiple specialists they encounter and the numerous decisions they must make. For patients with GBM management is further complicated by a poor prognosis, feelings of isolation, urgency to treat, and cognitive decline.

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January 19, 2021
Expanded Use of Innovative Brain Tumor Treatment Exemplified in GT Medical Technologies’ 2020 GammaTile® Therapy

Exciting news from Corporate Partner GT Medical who offer a truly groundbreaking treatment for those undergoing surgery for their brain tumor in the form of safe and effective surgically targeted radiation delivered right to the tumor site.

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June 1, 2020
We SEE You! Nominations Open For EBCI's 2020 National "HOPE AWARD"…

One of my most favorite things to do under my leadership of the EndBrainCancer Initiative is to talk directly to patients with brain cancer and to hear first hand, “their story” and to “see” with my own eyes as well as to “hear” with my own ears how they IMPACT others.

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May 31, 2020
Today Would Have Been our 2020 Bellingham Brain Cancer Walk….

Today, May 31, 2020, the very last day of #BTAM month, I find myself reflecting on many things and just looked through the photos from last year’s Bellingham Brain Cancer WALK (BBCW), and am smiling and crying at the same time.

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May 29, 2020
2020 National HOPE Award – A Message From Our President

I am spending my day reflecting on the national brain tumor community.  Specifically, I am also spending a lot of time over the last several weeks, amongst COVID-19, reflecting on the my late husband’s brain cancer journey and the last 18 years of co-founding and running the Chris Elliott Fund, now DBA EndBrainCancer Initiative.

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ENDBRAINCANCER INITIATIVE | CHRIS ELLIOTT FUND

Enhancing patient outcomes by expanding FDA-approved treatment modalities and fueling research in the pharma/bio/life sciences, device & diagnostic industries and by closing the existing GAP from initial diagnosis to IMMEDIATE AND EXPANDED ACCESS to specialists, researchers, advanced & innovative treatments, clinical trials and critical care with the ultimate goal of improving patient outcomes through updating and improving WHO & NCCN Guidelines and clinical practices related to Standard of Care for brain cancer patients.

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