Learn about Head to the Hill, a virtual advocacy event with the US Congress.
Learn about Head to the Hill, a virtual advocacy event with the US Congress.
Advocate for the Promising Pathway Act (S. 4426). Share your story and its importance.
(Courtesy of ASCO FDA Alerts) tovorafenib FDA Approval for LGG On April 23, 2024, the Food and Drug Administration granted accelerated approval to tovorafenib (Ojemda, Day One Biopharmaceuticals, Inc.) for patients 6 months of age and older with relapsed or refractory pediatric low-grade glioma (LGG) harboring a BRAF fusion or rearrangement, or BRAF V600 mutation. […]
Take Action. Contact the Washington State Health Care Authority to make an FDA-approved GBM treatment accessible for all patients.
Join us in advocating for coverage for the Tumor Treating Fields device by the Washington State Health Care Authority.
DCVax®-L represents a novel form of immunotherapy, developed by Northwest Biotherapeutics, which could be a new treatment option for glioblastoma. Join the movement to seek FDA approval.
The Promising Pathway Act shortens the approval process for revolutionary treatments, helping the people access these promising new treatments.
The Promising Pathway Act will double the speed of development of revolutionary treatments and could lead to the cure we've been seeking..
In the spirit of Thanksgiving, November becomes a canvas for expressions of gratitude. It's a time to spotlight the often-overlooked heroes among us—family caregivers. These remarkable individuals selflessly carry emotional, physical, and financial responsibilities to safeguard their loved ones on challenging health journeys. Let's take a moment to honor and celebrate these caregivers who give […]
PDUFA, the Prescription Drug User Fee Acts, ensures the FDA retains its capacity to promote the health and well-being of all Americans for another five years.
Show your support for the re-authorization of the PDUFA act. Send a petition for Senator Murray who leads the appropriations committee.
This year is all about the reality of running a 501(c)3 non-profit Advocacy organization from my perspective that directly and head-on meets the large unmet needs of patients, caregivers and their family members after a GBM diagnosis.
