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KIYATEC – A potential game-changer in informing your brain tumor treatment decision

Hi guys!  I am extremely excited to share what I believe is groundbreaking news in the battle against brain cancer and other solid tumors. In this case, it’s a response-prediction test which improves outcomes by testing live cancer cells against a number of potential therapies to demonstrate which ones will be most effective in killing […]

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Today Would Have Been our 2020 Bellingham Brain Cancer Walk….

Today, May 31, 2020, the very last day of #BTAM month, I find myself reflecting on many things and just looked through the photos from last year’s Bellingham Brain Cancer WALK (BBCW) , Presenting Sponsor:  Novocure (www.novocure.com)  and am smiling and crying at the same time.  Just look at these photos!  What a super cool […]

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2020 National HOPE Award – A Message From Our President

Today, it is May 17, 2020 and I am spending my day reflecting on the national brain tumor community.  Specifically, I am also spending a lot of time over the last several weeks, amongst COVID-19, reflecting on the my late husband’s brain cancer journey and the last 18 years of co-founding and running the Chris […]

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Brain Tumor Patients and the COVID-19 Crisis – The Musella Foundation w/ Eric T. Wong, M.D.

Brain Tumor Patients and the COVID-19 Crisis – The Musella Foundation w/ Eric T. Wong, M.D.

WEBINAR! COVID-19 & BRAIN CANCER! Important information on how COVID-19 affects Brain Cancer (and other cancer) patients. Join Al Musella of the Musella Foundation and Dr. Eric T. Wong, Brain Tumor Center & Neuro-Oncology Unit, Beth Israel Deaconess Medical Center, Dana Farber/Harvard Cancer Center and Harvard Medical School.  

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Book Launches with Call for Stories: Author and Advocate Dellann Elliott Mydland Calls for Stories Where Tragedy was Transformed for Good to Help Others

Book Launches with Call for Stories: Author and Advocate Dellann Elliott Mydland Calls for Stories Where Tragedy was Transformed for Good to Help Others

Book Launches with Call for Stories: Author and Advocate Dellann Elliott Mydland Calls for Stories Where Tragedy was Transformed for Good to Help Others SEATTLE, Aug. 27, 2019 /PRNewswire/ — Dellann Elliott Mydland, co-founder of the EndBrainCancer Initiative (EBCI), announces a new book she is writing to tell her story, and invites members of the […]

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Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies

Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies

Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies On August 7, the Centers for Medicare & Medicaid Services (CMS) finalized the decision to cover FDA-approved Chimeric Antigen Receptor T-cell, or “CAR T-cell” therapy, which is a form of cancer treatment that uses a patient’s own genetically-modified immune cells to fight […]

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The EndBrainCancer Initiative Urges Support for New FDA Clinical Trial Diversity Guidelines and Proposes Key Amendments

The EndBrainCancer Initiative Urges Support for New FDA Clinical Trial Diversity Guidelines and Proposes Key Amendments

The EndBrainCancer Initiative Urges Support for New FDA Clinical Trial Diversity Guidelines and Proposes Key Amendments Proposed Changes Offer Patients with Brain Cancer and Other Rare Diseases Access to Advocacy Oriented “Patient Partner Navigation Services” Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network   SEATTLE, Aug. 1, 2019 /PRNewswire/ — The […]

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The EndBrainCancer Initiative Calls on All Americans to Recognize and Support the Inaugural National Glioblastoma Awareness Day on July 17th

The EndBrainCancer Initiative Calls on All Americans to Recognize and Support the Inaugural National Glioblastoma Awareness Day on July 17th

The EndBrainCancer Initiative Calls on All Americans to Recognize and Support the Inaugural National Glioblastoma Awareness Day on July 17th Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network     SEATTLE, July 15, 2019 /PRNewswire/ — In June, the U.S. Senate took swift action and passed Senate Resolution 245 by unanimous consent. […]