Abstract: Navigating care for patients with cancer can be overwhelming considering the multiple specialists they encounter and the numerous decisions they must make. For patients with glioblastoma (GBM), management is further complicated by a poor prognosis, feelings of isolation, urgency to treat, and cognitive decline associated with this rare and progressive disease. For these reasons, […]
As a proud member of ASCO (American Society of Clinical Oncology), I am consistently impressed with the information they provide. They recently held their Annual Event #ASCO21 and I wanted to take the time to provide some of the incredible information and data that resulted from that meeting. While the information provided is not specifically […]
Hi guys! I am extremely excited to share what I believe is groundbreaking news in the battle against brain cancer and other solid tumors. In this case, it’s a response-prediction test which improves outcomes by testing live cancer cells against a number of potential therapies to demonstrate which ones will be most effective in killing […]
Hi guys! One of my most favorite things to do under my leadership of the EndBrainCancer Initiative is to talk directly to patients with brain cancer and to hear first hand, “their story” and to “see” with my own eyes as well as to “hear” with my own ears how they IMPACT others simply by […]
Today, May 31, 2020, the very last day of #BTAM month, I find myself reflecting on many things and just looked through the photos from last year’s Bellingham Brain Cancer WALK (BBCW) , Presenting Sponsor: Novocure (www.novocure.com) and am smiling and crying at the same time. Just look at these photos! What a super cool […]
Today, it is May 17, 2020 and I am spending my day reflecting on the national brain tumor community. Specifically, I am also spending a lot of time over the last several weeks, amongst COVID-19, reflecting on the my late husband’s brain cancer journey and the last 18 years of co-founding and running the Chris […]
WEBINAR! COVID-19 & BRAIN CANCER! Important information on how COVID-19 affects Brain Cancer (and other cancer) patients. Join Al Musella of the Musella Foundation and Dr. Eric T. Wong, Brain Tumor Center & Neuro-Oncology Unit, Beth Israel Deaconess Medical Center, Dana Farber/Harvard Cancer Center and Harvard Medical School.
Book Launches with Call for Stories: Author and Advocate Dellann Elliott Mydland Calls for Stories Where Tragedy was Transformed for Good to Help Others SEATTLE, Aug. 27, 2019 /PRNewswire/ — Dellann Elliott Mydland, co-founder of the EndBrainCancer Initiative (EBCI), announces a new book she is writing to tell her story, and invites members of the […]
Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies On August 7, the Centers for Medicare & Medicaid Services (CMS) finalized the decision to cover FDA-approved Chimeric Antigen Receptor T-cell, or “CAR T-cell” therapy, which is a form of cancer treatment that uses a patient’s own genetically-modified immune cells to fight […]
The EndBrainCancer Initiative Urges Support for New FDA Clinical Trial Diversity Guidelines and Proposes Key Amendments Proposed Changes Offer Patients with Brain Cancer and Other Rare Diseases Access to Advocacy Oriented “Patient Partner Navigation Services” Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network SEATTLE, Aug. 1, 2019 /PRNewswire/ — The […]
