Posted by
Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies

Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies

Another Advocacy Win for Patients: Medicare Finalizes Coverage for Some CAR T-Cell Therapies On August 7, the Centers for Medicare & Medicaid Services (CMS) finalized the decision to cover FDA-approved Chimeric Antigen Receptor T-cell, or “CAR T-cell” therapy, which is a form of cancer treatment that uses a patient’s own genetically-modified immune cells to fight […]

Posted by
The EndBrainCancer Initiative Urges Support for New FDA Clinical Trial Diversity Guidelines and Proposes Key Amendments

The EndBrainCancer Initiative Urges Support for New FDA Clinical Trial Diversity Guidelines and Proposes Key Amendments

The EndBrainCancer Initiative Urges Support for New FDA Clinical Trial Diversity Guidelines and Proposes Key Amendments Proposed Changes Offer Patients with Brain Cancer and Other Rare Diseases Access to Advocacy Oriented “Patient Partner Navigation Services” Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network   SEATTLE, Aug. 1, 2019 /PRNewswire/ — The […]

Posted by
The EndBrainCancer Initiative Calls on All Americans to Recognize and Support the Inaugural National Glioblastoma Awareness Day on July 17th

The EndBrainCancer Initiative Calls on All Americans to Recognize and Support the Inaugural National Glioblastoma Awareness Day on July 17th

The EndBrainCancer Initiative Calls on All Americans to Recognize and Support the Inaugural National Glioblastoma Awareness Day on July 17th Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network     SEATTLE, July 15, 2019 /PRNewswire/ — In June, the U.S. Senate took swift action and passed Senate Resolution 245 by unanimous consent. […]

Posted by

Let’s Write a Book Together to Help Others!

Thank you so much for your interest in submitting your story for my collaborative book.  First, let me tell you more about myself and my mission and purpose for this book. In my  daily life, I am the co-founder, President and Chair of the EndBrainCancer Initiative (formerly the Chris Elliott Fund) www.EndBrainCancer.org.  My late husband, Chris […]

Posted by
NCI-CONNECT and BTTC 2019 Meetings Summary

NCI-CONNECT and BTTC 2019 Meetings Summary

Summary: The 2019 NCI-CONNECT (Comprehensive Oncology Network Evaluating Rare CNS Tumors) and Brain Tumor Trials Collaborative (BTTC) Annual Meetings were held on April 29 and 30 at NIH in Bethesda, Maryland. The meetings were hosted by NCI’s Center for Cancer Research (CCR), Neuro-Oncology Branch, and attended by over 100 leaders, healthcare providers and researchers in neuro-oncology. The EndBrainCancer Initiative participated in […]

Posted by
The EndBrainCancer Initiative Urges Immediate ACTION so Brain Cancer Patients are Not Excluded from Medicare Coverage for Genetic Profiling (Next Generation Sequencing-NGS)

The EndBrainCancer Initiative Urges Immediate ACTION so Brain Cancer Patients are Not Excluded from Medicare Coverage for Genetic Profiling (Next Generation Sequencing-NGS)

The EndBrainCancer Initiative Urges Immediate ACTION so Brain Cancer Patients are Not Excluded from Medicare Coverage for Genetic Profiling (Next Generation Sequencing-NGS) Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network SEATTLE, May 9, 2019 /PRNewswire/ — In 2018, the Centers for Medicaid and Medicare Services (CMS) approved funding for specific diagnostic […]

Posted by
The EndBrainCancer Initiative to Feature Renowned Brain Cancer and Modified Poliovirus Duke Researcher, Dr. Annick Desjardins, as its Keynote Speaker for the 2019 Annual May “Brains Matter” ACTION Dinner as Advocacy is Underway Now to Bring this Treatment Option to the Seattle Area

The EndBrainCancer Initiative to Feature Renowned Brain Cancer and Modified Poliovirus Duke Researcher, Dr. Annick Desjardins, as its Keynote Speaker for the 2019 Annual May “Brains Matter” ACTION Dinner as Advocacy is Underway Now to Bring this Treatment Option to the Seattle Area

The EndBrainCancer Initiative to Feature Renowned Brain Cancer and Modified Poliovirus Duke Researcher, Dr. Annick Desjardins, as its Keynote Speaker for the 2019 Annual May “Brains Matter” ACTION Dinner as Advocacy is Underway Now to Bring this Treatment Option to the Seattle Area Press Release in PDF Format Press Release on PRNEWSWIRE National Distribution Network […]

Posted by
Patients, Survivors, Friends, and Partners Celebrate The EndBrainCancer Initiative’s GBM Patient & TOGETHER Day

Patients, Survivors, Friends, and Partners Celebrate The EndBrainCancer Initiative’s GBM Patient & TOGETHER Day

Patients, Survivors, Friends, and Partners Celebrate The EndBrainCancer Initiative’s GBM Patient & TOGETHER Day A unique event in Greater Puget Sound/Seattle, Washington celebrated and uplifted brain cancer patients and survivors providing inspiration, food and fellowship, massages, gifts, photography sessions, and more. Press Release in PDF Format Press Release on PRWEB National Distribution Network Seattle, WA […]

Posted by
GBM Patient & TOGETHER Day to Honor and Uplift Brain Cancer Patients on Friday, March 15th

GBM Patient & TOGETHER Day to Honor and Uplift Brain Cancer Patients on Friday, March 15th

GBM Patient & TOGETHER Day to Honor and Uplift Brain Cancer Patients on Friday, March 15th In collaboration with regional and national partners, Seattle-based EndBrainCancer Initiative (EBCI) will host this inaugural afternoon event for brain cancer patients, caregivers, and families. Press Release in PDF Format Press Release on PRWEB National Distribution Network Seattle, WA – […]

Posted by

Dellann Elliott Mydland, President of the EndBrainCancer Initiative, to Serve on Two National Clinical Trial Committees for NRG Oncology, an NCI-Funded Research Group

Dellann Elliott Mydland, President of the EndBrainCancer Initiative, to Serve on Two National Clinical Trial Committees for NRG Oncology, an NCI-Funded Research Group As a member of the NRG brain tumor disease site committee, Mydland will advocate for patient perspectives and interests in assessing and recommending specific brain cancer clinical trials for funding to the […]