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Post Category: Patient Advocacy

April 1, 2024
Advancing Hope: The Mission of the Ivy Brain Tumor Center

The Ivy Brain Tumor Center recognizes the profound impact of brain cancer, a disease for which effective treatments remain elusive. Their mission is to instill hope in patients grappling with this condition by spearheading research and development initiatives aimed at discovering and delivering much-needed medications. Despite the discontinuation of large-scale funding for brain cancer research […]

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March 29, 2024
ACT NOW: Comment Publicly to Support Coverage of Brain Cancer Treatment in WA State

Take Action. Contact the Washington State Health Care Authority to make an FDA-approved GBM treatment accessible for all patients.

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November 21, 2023
A Grateful November: Celebrating Family Caregivers

In the spirit of Thanksgiving, November becomes a canvas for expressions of gratitude. It's a time to spotlight the often-overlooked heroes among us—family caregivers. These remarkable individuals selflessly carry emotional, physical, and financial responsibilities to safeguard their loved ones on challenging health journeys. Let's take a moment to honor and celebrate these caregivers who give […]

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June 28, 2023
Non-English- Speaking Patients With Cancer Face Big Barriers to Care in the U.S., But Help Is Available

Patients who don't speak English face additional obstacles during their cancer journey but family, caregivers and the law are on their side.

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April 26, 2023
Submit Comments on use of Placebos in Clinical Trials

The FDA is drafting new guidance on the use of external data in lieu of placebos in clinical trials. Please support this change.

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June 13, 2019
Hopeless to Hope Initiative

EBCI is launching an initiative to bring more clinical trials of brain cancer treatments to the greater Puget Sound area, and to recruit and place qualified patients.

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April 3, 2019
Patients, Survivors, Friends, and Partners Celebrate The EndBrainCancer Initiative’s GBM Patient & TOGETHER Day

The EndBrainCancer Initiative Initiative recently hosted its first ever GBM Patient & TOGETHER Day on Friday, March 15th at the Bellevue Club in Bellevue, Washington

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March 14, 2019
GBM Patient & TOGETHER Day to Honor and Uplift Brain Cancer Patients on Friday, March 15th

The EndBrainCancer Initiative is hosting its first ever GBM Patient & TOGETHER Day on Friday, March 15th at the Bellevue Club in Bellevue, Washington. Current and past brain cancer patients, survivors, caregivers, and families are invited to this special event

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August 8, 2018
The EndBrainCancer Initiative Receives CITI Certification Becoming the First Brain Tumor Patient Advocacy Organization Listed as a Nationally-Recognized Recruiting Site

The EndBrainCancer Initiative received CITI certification to recruit caregivers to participate in brain cancer caregiver and patient clinical trials at the Pacific Neuroscience Institute and John Wayne Cancer Institute in conjunction with Providence Health Services of Southern California.

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February 21, 2018
Effecting Change in Glioblastoma – CURE Magazine Article by Dellann Elliott Mydland

This article describes the potential for a significant shift in current standard of care. This includes discussions related to prior consent, immunotherapy, vaccines, devices, DNA sequencing/genomic profiling, MGMT testing and so on. It also includes discussions related to advanced treatments, targeted therapies and/or clinical trials prior to surgery.

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July 28, 2017
Senator McCain: Optimism, Education & Hope

Our collective awareness of this dreaded disease was heightened last week with the announcement that Senator John McCain will now be counted among the brave GBM warriors.

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June 13, 2017
Reflections From ASCO Annual Meeting

Celebrating the courage, grace, and selflessness of patients everywhere who battle cancer and participate in clinical trials. The wall was filled with notes from providers, families, and advocates.

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Enhancing patient outcomes by expanding FDA-approved treatment modalities and fueling research in the pharma/bio/life sciences, device & diagnostic industries and by closing the existing GAP from initial diagnosis to IMMEDIATE AND EXPANDED ACCESS to specialists, researchers, advanced & innovative treatments, clinical trials and critical care with the ultimate goal of improving patient outcomes through updating and improving WHO & NCCN Guidelines and clinical practices related to Standard of Care for brain cancer patients.

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