As you are most likely aware, Chris Elliott Fund strongly advocates that all brain tumor patients be given IMMEDIATE ACCESS to the most advanced and most appropriate FDA-approved treatments for their particular disease. Yet, CMS and DME coding and other classification issues continue to create significant roadblocks for certain groups of patients, effectively denying them access to potentially life-saving treatments.
We have just submitted the attached letter to the U.S. Department of Health and Human Services (Gliadel Coding Problem Letter 06-20-14). in response to a classification issue around Gliadel wafers. However, we are just one voice, and need others to join us in reversing current policy. These letters must be received by June 30 to be in time.
You can join CEF and make your voice heard in one of two ways:
- Write a similar letter to CEF’s (must be received by June 30th). We will be happy to assist you with this. Furthermore, if you would like CEF to overnight it via USPS on your behalf, all letters need to be emailed to DeEtta@ChrisElliottFund.org by midnight this Wednesday so that we can get them out early this TH morning for arrival early on Monday June 30th. Note that the letter will need to be SIGNED and then scanned/attached to email for it to be accepted. You will also need to use copy similar to what is in the CEF letter. We will print on our end for inclusion into the packet.
- Alternatively, you can go online (link: http://www.regulations.gov/#!home) and comment prior to Monday June 30th deadline
Thank you to all for your help and support. – Dellann Elliott Mydland