Medicare Coverage for Brain Tumors
Living with the diagnosis and treatment of a brain tumor is an extremely difficult and challenging task for patients and their families. This fact sheet will help you understand what you may expect. It also provides a number of strategies which can help you cope with the challenges.
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10 Vital Questions Video
The EndBrainCancer Initiative | Chris Elliott Fund shares the top 10 questions brain tumor patients should ask their doctor after they have been diagnosed with a brain tumor.
You will need to make your own treatment choices and information is key. Take charge and learn to advocate for your own health care.
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Top 10 Questions and Crucial Conversations to IMMEDIATELY ASK Your Doctor When Faced with a Brain Tumor
These questions are vital to your life. It is so important to ask the right questions and get straight answers as soon as possible in the process. This fact sheet will equip you to obtain the very vital facts related to your own condition and the experience of your current medical team.
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Strategies for Coping: Mind, Emotions & Personality Changes
Living with the diagnosis and treatment of a brain tumor is an extremely difficult and challenging task for patients and their families. This fact sheet will help you understand what you may expect. It also provides a number of strategies which can help you cope with the challenges.
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What is Chemo Brain and Where Do I Go for Help?
If you are just starting treatment, you will want to understand the risks of your chemo treatment protocol on your ability to think clearly and process information. This fact sheet will help you make informed decisions about your treatment.
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Brain Tumor Patients: Ask your doctor about DNA sequencing and genetic testing
The EndBrainCancer Initiative | Chris Elliott Fund and Dellann Elliott Mydland share key reasons why DNA sequencing and genomic testing are critical early-on in a brain tumor or brain cancer patient’s journey.
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Medical Terms & Definitions Every Brain Tumor Patient Should Know
Becoming a rockstar health advocate does require a bit of a learning curve. Your medical team will likely use many terms with you that you may not understand. This glossary was developed to assist you so you have a better handle on the terminology, serving as a reference throughout your journey.
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My Social Support Network
When facing a brain cancer diagnosis, having a support network is very important. Often it can significantly affect outcomes, including long term survival. One recent study showed that lung cancer patients with strong social relationships and support systems had a 50% increased likelihood of survival compared to those who lacked these basic social ties. This […]
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Talking to Your Family & Friends About Your Brain Tumor
This fact sheet offers guidance and wisdom on how to communicate with your family and friends about your brain tumor. The first thing to realize is that you don’t have to personally tell everyone. You can get help…
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Online Resources
This fact sheet provides links to a wide array of brain cancer resources for patients, families, caregivers, & healthcare professionals.
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Why it is vital to be seen at a Brain Tumor Center and NCI Designated Cancer Centers?
Brain Tumor Centers and NCI Designated centers offer world class, state of the art programs in multi-disciplinary cancer research.
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Who is on my Integrated Support Team and what do they do?
You are not alone in your brain tumor diagnosis. Your Integrated Support Team provides emotional and support beyond the doctor’s office.
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Planning Your Doctor’s Consultation
Your doctor’s consultation is a vital step in the process of the journey. BE PREPARED! This guide will help you know who you may be meeting with, critical questions to ask and how to prepare.
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Glioblastoma: A Patient’s Guide
Glioblastoma (also known as glioblastoma multiform or GBM) is the highest grade glioma (grade IV) brain tumor. This easy-to-read resource covers what you need to know now about glioblastoma and your brain tumor. Link to Article
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