Understanding Immunotherapy Side Effects
Immune checkpoint inhibitors (a type of immunotherapy) offer a promising new way to treat certain cancers. But these medicines can cause your immune system to attack normal organs and tissues in your body, affecting the way they work.
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Questions to Ask About Cancer Care
Are you unsure what questions to ask your cancer care providers? If so, you're not alone. Since many people don't know what to ask, NCCN has created lists of questions that can help you get the most out of your time with your provider.
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Why Should I Consider a Clinical Trial?
Everyone with cancer should carefully consider all of the treatment options available for their cancer type, including standard treatments and clinical trials. Talk to your doctor about whether a clinical trial may make sense for you.
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Medicare Coverage for Brain Tumors
Living with the diagnosis and treatment of a brain tumor is an extremely difficult and challenging task for patients and their families. This fact sheet will help you understand what you may expect. It also provides a number of strategies which can help you cope with the challenges.
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10 Vital Questions Video
The EndBrainCancer Initiative | Chris Elliott Fund shares the top 10 questions brain tumor patients should ask their doctor after they have been diagnosed with a brain tumor.
You will need to make your own treatment choices and information is key. Take charge and learn to advocate for your own health care.
Watch VideoTop 10 Questions and Crucial Conversations to IMMEDIATELY ASK Your Doctor When Faced with a Brain Tumor
These questions are vital to your life. It is so important to ask the right questions and get straight answers as soon as possible in the process. This fact sheet will equip you to obtain the very vital facts related to your own condition and the experience of your current medical team.
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Strategies for Coping: Mind, Emotions & Personality Changes
Living with the diagnosis and treatment of a brain tumor is an extremely difficult and challenging task for patients and their families. This fact sheet will help you understand what you may expect. It also provides a number of strategies which can help you cope with the challenges.
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What is Chemo Brain and Where Do I Go for Help?
If you are just starting treatment, you will want to understand the risks of your chemo treatment protocol on your ability to think clearly and process information. This fact sheet will help you make informed decisions about your treatment.
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Brain Tumor Patients: Ask your doctor about DNA sequencing and genetic testing
The EndBrainCancer Initiative | Chris Elliott Fund and Dellann Elliott Mydland share key reasons why DNA sequencing and genomic testing are critical early-on in a brain tumor or brain cancer patient’s journey.
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Medical Terms & Definitions Every Brain Tumor Patient Should Know
Becoming a rockstar health advocate does require a bit of a learning curve. Your medical team will likely use many terms with you that you may not understand. This glossary was developed to assist you so you have a better handle on the terminology, serving as a reference throughout your journey.
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My Social Support Network
When facing a brain cancer diagnosis, having a support network is very important. Often it can significantly affect outcomes, including long term survival. One recent study showed that lung cancer patients with strong social relationships and support systems had a 50% increased likelihood of survival compared to those who lacked these basic social ties. This […]
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Talking to Your Family & Friends About Your Brain Tumor
This fact sheet offers guidance and wisdom on how to communicate with your family and friends about your brain tumor. The first thing to realize is that you don’t have to personally tell everyone. You can get help…
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Online Resources
This fact sheet provides links to a wide array of brain cancer resources for patients, families, caregivers, & healthcare professionals.
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Why it is vital to be seen at a Brain Tumor Center and NCI Designated Cancer Centers?
Brain Tumor Centers and NCI Designated centers offer world class, state of the art programs in multi-disciplinary cancer research.
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Who is on my Integrated Support Team and what do they do?
You are not alone in your brain tumor diagnosis. Your Integrated Support Team provides emotional and support beyond the doctor’s office.
View Fact SheetPlanning Your Doctor’s Consultation
Your doctor’s consultation is a vital step in the process of the journey. BE PREPARED! This guide will help you know who you may be meeting with, critical questions to ask and how to prepare.
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Glioblastoma: A Patient’s Guide
Glioblastoma (also known as glioblastoma multiform or GBM) is the highest grade glioma (grade IV) brain tumor. This easy-to-read resource covers what you need to know now about glioblastoma and your brain tumor.
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Tips for Wearing the Optune Gio Device
Torey Gilbertson, GBM Patient, shares the top tips he has learned over four years of wearing the Optune Gio device for brain cancer.
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Tirabrutinib for the Treatment of Relapsed or Refractory PCNSL
Tirabrutinib for the treatment of relapsed or refractory primary central nervous system lymphoma (PCNSL): Efficacy and safety from the phase II PROSPECT study.
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Why Choosing the Right Health Center Matters for Brain Tumor/Brain Cancer Treatment
Not all healthcare facilities are created equal. Choosing where to receive treatment for your brain tumor is a critical decision that can significantly impact your care.
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A Step-by-Step Guide on How to Use ClinicalTrials.gov
ClinicalTrials.gov is a website that provides detailed information about clinical trials available for different medical conditions, including brain cancer. It helps patients explore treatment options, find clinical trials that may be right for them, and learn more about new therapies being tested to improve care and outcomes.
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Share Your Patient Story with EBCI
Sharing your story could help inspire HOPE in others, as well as help us at the End Brain Cancer Initiative in our mission to advocate for increased patient access, more research funding, and more available treatment options.
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Insurance 101: Terms & Definitions Every Patient Should Know
Navigating health insurance can be confusing and overwhelming. This fact sheet includes some terms and definitions to help you on your journey.
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PCNSL Patient Resources
Primary central nervous system lymphoma (PCNSL) is a rare form of non-Hodgkin lymphoma (NHL) that begins in immune system cells known as lymphocytes. Click below to view resources, treatment options, patient stories, and more.
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The Brain Tumour Patients' Charter of Rights
The purpose of this charter is to achieve the best possible health and quality of life outcomes for adults and children living with a brain tumour.
To represent an aspirational ideal against which quality standards, policies and practices are developed, monitored and delivered.
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