Each of the Senators & Representatives will have a "Contact" link under their information. When you click on those links, you'll see their preferred way to be emailed. Generally this is via a form. To help make this easy for you, we have drafted some wording you are welcome to copy and paste into the content of your form(s). Please feel free to edit this letter to add any personal or pertinent information you would like included:
                                                                            ____________________________________________

Subject: 
Please support the Promising Pathways Act (S.1906 and H.R.4408)

Content:
I am reaching out to you to ask that you support and co-sponsor the Promising Pathway Act (S.1906 and H.R.4408).

The Promising Pathway Act provides an FDA provisional approval pathway for medications that treat diseases that progress rapidly and have few to no treatment options. This pathway will deliver medication into the hands of patients who desperately need them.

One of the diseases that could be most impacted by this bill is malignant brain tumors. These tumors affect the very essence of our beings. They cause neurologic problems such as inability to move, walk, talk, comprehend, play, go to work or school, and cause personality changes and seizures. Typically patients die within a year or 2 after diagnosis.

There currently is no cure and the currently available treatments result in a miniscule chance of beating this disease. This bill will allow patient to get access to new treatments NOW -- when they need them, and for doctors to combine them and test these combinations quickly. We deserve the right to get access to these treatment.

As a constituent, I ask that you sign on in support of this legislation.

Thank you for your time and consideration.

Your Name

We ask for your support of the PPA, not only because it may save lives and refocus our efforts in the fight against brain cancer, but may actually reduce the costs involved with treating patients.

Under the current compassionate access system, once the treatment is approved, there exists no centralized, third-party tracking system on patient responses or side effects. This is both reckless and short-sighted. Through the PPA, third-party registries are required both for communication to the patient population and researchers, but also to eventually assist in the full drug approval determination. This is also critical in the design of combinational therapy options as it will demonstrate future considerations of care. The FDA approval pathways must be continually rethought and redesigned to balance faster access to therapies with increased post-market surveillance requirements. The PPA provides the framework to protect patient safety, while also providing patients with the opportunity to access potentially life-saving treatments the current system prevents them from accessing.

As Congress continues to consider legislative solutions to support patients with rare and life-threatening diseases, and in light of the current congressional efforts to reauthorize the FDA user fee program, we urge you support and pass the PPA. The PPA is not only a way to advance trials and protect patients, but it may be the most effective way to save lives. It is for this reason that over 50 foundations and chapters in 21 states and 3 countries support this measure. We need your help in making it a priority.